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UK Govt Eyes NHS Patient Data for AI Research Amid Privacy Concerns

Written by : Jayati Dubey

January 16, 2025

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Source: X (twitter)

A central aspect of the plan is the establishment of a National Data Library, which aims to securely unlock the value of public data.

The UK government has unveiled plans to leverage anonymized NHS patient data to fuel artificial intelligence (AI) research and attract private sector investment.

The proposal is part of a broader strategy to establish the UK as a global leader in AI innovation, with Prime Minister Keir Starmer pledging significant investment in AI infrastructure.

Addressing the initiative, Starmer said, “The AI industry needs a government on its side. We must move fast and take action to win the global race.”

He emphasized the potential of NHS data in driving medical advancements, describing the opportunity as transformative for millions of lives.

A central aspect of the plan is the establishment of a National Data Library, aimed at securely unlocking the value of public data.

Private companies would gain access to anonymized NHS datasets to train AI models, develop medical tools, and innovate treatments.

The government has highlighted past successes in utilizing NHS data, such as AI tools aiding in diagnosing conditions like high blood pressure.

Chancellor of the Exchequer Rachel Reeves stated that the initiative is part of the government’s modern industrial strategy to attract AI businesses, boost investment, and create jobs across the UK.

Data Anonymity & Privacy Concerns

However, experts and privacy advocates have raised concerns about the security and anonymity of patient data.

Speaking to The Guardian, Andrew Duncan, Director of Foundational AI at the Alan Turing Institute, warned about the potential for re-identifying individuals even with anonymized data.

The government has confirmed that anonymized data is not subject to the General Data Protection Regulation (GDPR), which allows its legal use in research.

However, it remains unclear if the 6% of NHS patients who have opted out of sharing their data for research and planning will be excluded from these datasets.

Addressing privacy concerns, Starmer acknowledged the need for stringent controls.

“It is important that we keep control of that data. I completely accept that challenge, but we must not adopt a defensive stance that inhibits breakthroughs,” he said.

Boosting AI Infrastructure & Talent

Entrepreneur Matt Clifford has been appointed as an advisor to the Prime Minister on AI opportunities.

He emphasized the urgency of capitalizing on AI advancements, stating, “These steps put us on the strongest possible footing to ensure AI delivers in all corners of the country.”

The government’s plan also includes measures to develop AI-related skills, talent, and infrastructure to attract global firms and strengthen the UK’s position in the competitive AI sector.

While the initiative aims to position the UK as an AI hub, the balance between innovation and safeguarding patient privacy will be critical.

As discussions unfold, the government faces the dual challenge of maximizing AI’s potential while addressing public concerns about the ethical use of sensitive health data.

Stay tuned for more such updates on Digital Health News.


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